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My Alzheimer's News


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#41 curlywill

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Posted 28 September 2012 - 02:57 PM

disgusting doesn't even come close to covering this... i wish you all the best Daryl, sincerely i do.

#42 nails

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Posted 28 September 2012 - 04:33 PM

disgusting doesn't even come close to covering this... i wish you all the best Daryl, sincerely i do.


have i missed part of the thread?

#43 curlywill

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Posted 28 September 2012 - 04:51 PM

have i missed part of the thread?


just meant the parts about the cutbacks etc with the nhs and the government being total #@#@#@#s as usual

#44 Deano

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Posted 28 September 2012 - 08:54 PM

Sad news Daryl and glad to see you have vented your condition here or most would never know.Wishing you all the best and hope there is a cure in the near future.

My Mum been in hospital for over 3 Months now due to doctors trying to change her anxiety meds to save money and left her a complete wreck.Meds = Megabucks hope there is a change very soon.

Take care(On the wine by the way),

Deano
[SIGPIC][/SIGPIC]

#45 Daryl

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Posted 28 September 2012 - 09:03 PM

Sad news Daryl and glad to see you have vented your condition here or most would never know.Wishing you all the best and hope there is a cure in the near future.

My Mum been in hospital for over 3 Months now due to doctors trying to change her anxiety meds to save money and left her a complete wreck.Meds = Megabucks hope there is a change very soon.

Take care(On the wine by the way),

Deano


Hi Deano mate...

Long time no here from you - I hope you are keeping well. :)

I am sorry to hear about your mum, I have suffered with my nerves throughout my life, so I do appreciate being in hospital with them - and the change of medications can be awful to try and get you in a more stable mood... I hope she finds the right medication to suit her soon.

I am doing well... just moaning about things as I usually do - but it keeps me going! lol

Take care matey :)
All The Best

Daryl
 
My blogsite is here: click the icon --->   :computer:
 

My name is Daryl, I was born in 1965 and have been into FME since 2002!
 
On 23 June 2011, I was diagnosed with Alzheimers Disease  In November 2012, I was diagnosed with Parkinson's Disease and Parkinsonian Syndrome too.
 
I can be found at:
 
My new blog-site...
 
...or at Facebook here: --> https://www.facebook.com/daryl.lees
 
=======================================================

 
Visit my website on the icon above for my WebBlog, or pop over and see me on the social media at  ---> Daryl on... Facebook.png
 
=======================================================
 


speed

#46 nails

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Posted 28 September 2012 - 10:03 PM

just meant the parts about the cutbacks etc with the nhs and the government being total #@#@#@#s as usual


ive yet to meet any nurse or doctor that ist totally 100% commited to their job or their patients. sadly like every company there are targets and quota's to fill

#47 Daryl

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Posted 05 November 2012 - 10:43 PM

*** Update to DWP appeal ***

I have had a letter today (5 November) from the DWP regarding my appeal on the decision to have been put onto ESA (Work Group).

The letter states that following an earlier decision to put me in the work category and the evidence provided by myself and medical professions involved challenging this decision, they have 'awarded' me into the ESA (Support Group) - in other words I have won my appeal!

The irony of it all, is that the same report, medical records and details were all sent back to them at the DWP. It is because they themselves have checked the reports... and not the dreaded ATOS - who have made so many disabled people's lives a misery, including my own - and come to the inevitable conclusion.

It has been a nightmare these past few months since changing from Incapacity Benefit to ESA and being put into the wrong category and has caused some quite bad mental and physical upset for me, but at long last it is over... for now. Next year, we shall be starting Universal Credit, and no doubt will have a battle when my DLA, which I have only recently been put on changes to PIP - so expect more news on that to come!

I had the letter come today, which was a good job really because on Wednesday I was due to attend an interview at the JobCentre for my ESA work support. My dementia care nurse was coming with me, but now I am on the Support Group, I haven't got to attend.

That's one horrid part of this illness that hasn't got to play on my mind now - worrying about my financial situation for the foreseeable future.

Thanks everyone for all the support you have shown me throughout this roller coaster ride with my Alzheimer's... I promise much more to come! :D
All The Best

Daryl
 
My blogsite is here: click the icon --->   :computer:
 

My name is Daryl, I was born in 1965 and have been into FME since 2002!
 
On 23 June 2011, I was diagnosed with Alzheimers Disease  In November 2012, I was diagnosed with Parkinson's Disease and Parkinsonian Syndrome too.
 
I can be found at:
 
My new blog-site...
 
...or at Facebook here: --> https://www.facebook.com/daryl.lees
 
=======================================================

 
Visit my website on the icon above for my WebBlog, or pop over and see me on the social media at  ---> Daryl on... Facebook.png
 
=======================================================
 


speed

#48 cashbox1

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Posted 05 November 2012 - 11:32 PM

nice to hear some good news for a change Daryl mate :) well done on the appeal

ye know too much....


#49 Guest_ricardo de ponsa_*

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Posted 06 November 2012 - 01:08 PM

Good news there Daryl, well done M8. Just shows, never give up, fight them all the way!!!! Keep up the good work M8. Hope there will be more good news for you to report to us soon.
Regards
Ricardo.

#50 stanmarsh14

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Posted 06 November 2012 - 01:33 PM

At long last and without the ATOSsers pulling the strings, seams the DWP sees sense.

Granted it does nothing for the months of hell ATOSsers have put you through, but at least now this chapter is at an end, and you can rest easy.

#51 Jaks

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Posted 06 November 2012 - 06:08 PM

I am glad this has worked out for you, I have nothing but contempt for ATOS. I have read a report by a nurse who used to work for them doing the medical's, she was told to lie and disregard all medical reports from people doctors, she couldn't carry on doing this and quit her job. I have also read about people turning up in wheelchairs made fit for work, as long as they could use their arms they could hold a pen and do a job, also if they were properly dressed they were passed fit for work.

A friend of the family worked for a Tesco's on the checkouts for many years. Over the past few years he was put on anti depressants and strong pain killers for his knees. Tesco found out and they gave him 2 choices - quit or we will sack you as they pills he was on was too strong and had some funny side effects. He was placed on incapacity benefit ( after years paying into the state) and then he was put on the new ESA.

He had to go to work related interviews and the man running it told him to appeal against ATOS first decision ( the found him fit for work), he is in his 50's, has bad depression and has problems with his knees. He went back to ATOS who accepted he had problems but they still found him fit for work - he received a letter 8 weeks after going back to ATOS saying he was put back on the work support group. He was told he had been over paid as he should have been put back on JSA weeks ago, he has to pay the overpayment back out of his JSA despite the DWP saying it wasn't his fault as he didn't receive the letter telling him to go back on JSA. He also had to reclaim housing benefit under JSA as they stopped paying it as his ESA has been stopped - again he wasn't told and he couldn't do anything about it as it had been over 1 month. The DWP knew weeks ago but my mate found out last week by letter from the DWP. He is know £700 odd in debt due to this mess up by no fault of his own. His housing benefit has been reduced to pay for the over payment and he has to find £60 odd a month to top his rent out of the JSA as well as having deductions from the ESA overpayments taken out.

Sorry to hijack this thread and I am hoping it works out for my mate like it worked out for you.

#52 ady

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Posted 06 November 2012 - 06:49 PM

At long last and without the ATOSsers pulling the strings, seams the DWP sees sense.

Granted it does nothing for the months of hell ATOSsers have put you through, but at least now this chapter is at an end, and you can rest easy.


Seconded......good luck Daryl......

#53 Guest_Brownbag_*

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Posted 06 November 2012 - 10:51 PM

The DWP are set to release the Work Programme statistics on 27th Novemeber. Should be intreasting. Did anyone see A4E chairman give her interview on Channel 4 other week absolute pathtic! :cute: Congrats on winning your first appeal.

www.youtube.com/watch?v=pQcpFGITaj0

#54 Daryl

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Posted 26 November 2012 - 05:20 PM

*** UPDATE ***

After having tests done today at the hospital, and being seen by two doctors, I have been diagnosed as being in the early stages of elderly Parkinson's Disease, with a secondary condition called Parkinsonian Syndrome.

Because I am in the early stages of Alzheimer's Disease too, and the medications I am currently on, this has helped bring on the elderly form of the disease, which doesn't usually affect people until in their 60s!

I start a course of medications tomorrow called Mirapixin PR - this should hopefully help me manage the tremor I am getting on my left hand side of my body. I have got to get in touch with the hospital in two weeks time, to see if the medication is helping me and I have no side effects.
All The Best

Daryl
 
My blogsite is here: click the icon --->   :computer:
 

My name is Daryl, I was born in 1965 and have been into FME since 2002!
 
On 23 June 2011, I was diagnosed with Alzheimers Disease  In November 2012, I was diagnosed with Parkinson's Disease and Parkinsonian Syndrome too.
 
I can be found at:
 
My new blog-site...
 
...or at Facebook here: --> https://www.facebook.com/daryl.lees
 
=======================================================

 
Visit my website on the icon above for my WebBlog, or pop over and see me on the social media at  ---> Daryl on... Facebook.png
 
=======================================================
 


speed

#55 Taylor525

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Posted 26 November 2012 - 05:33 PM

aww that's terrible!!! I really hope this isn't affecting you mentally!! I really do hope this medication helps you through what you're going through and hope it doesn't affect you too much!!

Please do keep us informed Daryl!!

#56 thunderstorm

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Posted 26 November 2012 - 08:09 PM

Oh I'm sorry to hear that Daryl mate. Do keep us informed of your progress and it would help if you send me a PM of updates.

I will now use this opportunity to tell every one here that I too myself have the very early stages of Dementia.
My dad died of it in early 2010 so I was able to luckily see some of the signs myself.
I will not elaborate any further for now as I still haven't really come to terms with it.

#57 Daryl

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Posted 26 November 2012 - 08:23 PM

Oh I'm sorry to hear that Daryl mate. Do keep us informed of your progress and it would help if you send me a PM of updates.

I will now use this opportunity to tell every one here that I too myself have the very early stages of Dementia.
My dad died of it in early 2010 so I was able to luckily see some of the signs myself.
I will not elaborate any further for now as I still haven't really come to terms with it.


As mentioned in our chats mate... it does take time - you know where I am at bud anytime, if you want to unload. :)
All The Best

Daryl
 
My blogsite is here: click the icon --->   :computer:
 

My name is Daryl, I was born in 1965 and have been into FME since 2002!
 
On 23 June 2011, I was diagnosed with Alzheimers Disease  In November 2012, I was diagnosed with Parkinson's Disease and Parkinsonian Syndrome too.
 
I can be found at:
 
My new blog-site...
 
...or at Facebook here: --> https://www.facebook.com/daryl.lees
 
=======================================================

 
Visit my website on the icon above for my WebBlog, or pop over and see me on the social media at  ---> Daryl on... Facebook.png
 
=======================================================
 


speed

#58 Guest_ricardo de ponsa_*

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Posted 26 November 2012 - 08:34 PM

Double sadness.
Daryl. Sorry to here of the results of visiting the hospital.
Thunderstorm. Sorry to here from you the news of your illness.
For both of you to suffer this in your 40's is so unfair.

#59 thunderstorm

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Posted 26 November 2012 - 09:33 PM

Thank you ricardo and Daryl.

#60 Guest_barcrest junky_*

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Posted 26 November 2012 - 10:46 PM

Oh I'm sorry to hear that Daryl mate. Do keep us informed of your progress and it would help if you send me a PM of updates.

I will now use this opportunity to tell every one here that I too myself have the very early stages of Dementia.
My dad died of it in early 2010 so I was able to luckily see some of the signs myself.
I will not elaborate any further for now as I still haven't really come to terms with it.


Sorry to hear of your news mate. Please don't elaborate further unless and until you feel able to do so and are full comfortable with doing that. I find Daryl's posts on the subject incredibly brave but somehow encouraging in the way he finds his way through the barriers and obstacles it throws at him. If ever you attend one of the Mecca meets, like the one we are having next Saturday it would be really good to meet you in person and say hi to a local lad. Well done for posting what you did; I suspect your mouse hovered over the Post key for sometime before finally clicking; I think you made a courageous but worthwhile decision there and you will find the membership incredibly supportive.

All the best for the future.

Gazza




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